Please provide your email address to receive an email when new articles are posted on . The FDA has approved an abbreviated new drug application for a generic version ...

Each week, this series shares MarionMade! stories of our many wonderful people, places, products and programs in the greater Marion community. To read more positive stories of Marion, or to share some ...

More than two years after the Government committed to adding SMA to newborn testing, families are still waiting ...

MARYLAND HEIGHTS, Mo. — Nothing lifts your spirits, quite like lifting someone else's. That's what they do every day at MDA Camp. "It's somewhere where you're not defined by your disease," said ...

Gene therapies have extended survival in muscular dystrophy, requiring improved care transitions from pediatric to adult systems. Current systems lack adequate staffing, specialists, and communication ...

Darren Ormiston, a 9-year-old boy with Duchenne muscular dystrophy, suddenly screamed and lept from his wheelchair, running to a doctor with his hands in the air. Darren wasn’t in distress, just ...

With grace that extends far beyond the pageant stage, Miss Asia Pacific World 2013 Srishti Rana recently took to Instagram to champion a cause close to countless hearts—raising awareness for children ...

Myotonic dystrophy type 1 (DM1) is the most common form of adult-onset muscular dystrophy, affecting about 1 in 8,000 people. While it is well known for causing muscle weakness and stiffness, DM1 also ...