在面对罕见疾病时,家庭所展现出来的坚韧与希望总是令人动容。近日,我们再次探访了患有PAPA综合征的小女孩——馨馨的家庭。自确诊以来,馨馨的母亲一直积极寻求治疗方案,并表示如果未来有专门针对PAPA综合征的新药开发,她愿意让自己的女儿参与临床试验。 PAPA(Pyogenic Arthritis, Pyoderma Gangrenosum and Acne)综合征是一种极其罕见的遗传性自身炎症性疾病 ...
LEO Pharma A/S, a global leader in medical dermatology, today announced it will present 23 scientific posters at Maui Derm Hawaii 2026 (Jan. 25-29), showcasing a comprehensive body of evidence across ...
Who What When is an interactive gameshow from South Carolina Public Radio that takes you on a journey through history and pop culture. On each episode, hosts Daniel Thompson and Brandon Gray quiz ...
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